Tuesday Tidbit - She can handle it.

We are currently on vacation in sunny PEI.

Today we were getting ready to go to Sandspit, the amusement park.

Amy was on the swings, we heard her pump beeping.

She looks down and says "low predicted, 6.9, two arrows down."

She promptly opens her purse, takes out a pack of fun-fruit type candy and eats it.

She can handle this!

Tuesday Tidbit - Diabetes Bling

Over the past few months, we collected quite the assortment of diabetes bling.

 

On Amy's wall next to her closet, we have a few hooks set up that display her Medical Alert bracelets from Laurens Hope, and her pump pouches.  We have two from Too Sweet Boutique (which is currently closed while the owner relocates), and 5 others that my very talented mother has made.  Two are not shown in this picture, the one she is wearing, and another one.  Amy just loves them, and keeps telling my mom that she will need one for Halloween and Christmas too!

 

 

Kids 2, Mom 0

Last night was a bust.

Amy was riding high all yesterday.

I noticed when I got home.  When I asked about it, I was told that they'd tried to do a correction several times, but a lot of the time there was "enough" IOB to deal with it. I explained that these are the times that we would set a temp basal at a higher rate.  I give my mom credit, she's learning quickly these past few weeks while she has Amy daily during the summer.  I also know that she didn't want to call me at work as I was swamped this week and very short staffed.

So sometime after 12 am I finally got her BG at a respectable level.  By 2am I was awoken by a predicting low alarm.  I had a look, tested her BG, which was slightly higher than the SG.  I decided to play it safe, gave 1/4 cup apple juice to bump her up a bit, and set a reduced temp basal.  I went to bed satisfied, and actually turned off my 3am regular check alarm on my iphone.  Yay!  I might get 4 hours of sleep in a row!

MOM!  MOM! I just throwed up in my bed!

I jumped out fast and hauled Rylie out of her loft bed just in time for her to vomit again, but in the toilet.  I assessed the damage......all over the bottom of her PJs and a pile in the middle of her bed.  Thank goodness for waterproof mattress pads!

I woke Corey, and together we cleaned her up, and put the linens in the washer.  Amy woke up and said that her nose was stuffy and asked for some of her nasal spray.

Corey took the couch and Rylie went to bed with me.  After what seemed like 5 mins it was time to get up and ready for work while Corey stayed home with the girls today.

Amy woke with a high BG, a fever, and VERY swollen neck glands.  I haven't been able to see into her throat for any white patches, but her tonsils do look swollen.  I'm planning to give it a day or two and keep her basals bumped up as she is still running a bit too high.

One vomit-y, one sick-ish

Kids 2, mom 0

Tuesday Tidbit

When we are around people that don't know Amy has diabetes, she has been tucking her shirt under and around her pump so it is completely covered.

When I asked her why, she said "because I don't want anyone to ask me what it is".

I told her that she can tell them she has diabetes.

She then said "but then they will ask me what's diabetes"

I don't want her to be embarrassed about her diabetes, but I don't want to push her about it either.

The eyes

Amy had a slight turn in her eye when she was little, we mostly noticed it in pictures

Amy 27 months, Rylie 1 month

We had her to the eye doctor with us a few times, but she didn't share the same concern until she was almost 3 1/2 years old.  By then, she had lost some of the ability to see 3D.  They told us that she would likely wear glasses until she was 6, and that her eye should be strengthened by then.

1st pair of glasses

When she was 6, we brought her back to they eye doctor.  She didn't want to wear her glasses anymore, and she actually remembered them saying "until 6 years old".  Apparently her eyes had learned 20/20, so we were told that she didn't need to wear them everyday, but should at school, or when she would be doing lots of reading and concentration work.  She did too, until about half way through the year.  We were dealing so much with diabetes by then, that we humored her and let her be.

BIG.MISTAKE!

Her eyes have really gone downhill. The turn is back (which I was noticing, but no one else seemed to).  She has to wear them full time again, with a stronger prescription.  They also took a picture of her eye as a baseline since she has diabetes.

I remember a time when I thought it was such a sin because there was something different about Amy.  That she had to wear glasses.  And that it wasn't fair because she had to deal with that.  Well, that was nothing compared to taking care of diabetes!

Everyday is different, and every day has its challenges, but every day is getting easier with time.

Tuesday Tidbit

This makes me both LAUGH and SAD at the same time.

The best line: "My daughter is not allowed to eat two things: Poison, and Cookies... laced with Poison"

Happy Canada Day!!! (and more)

HAPPY CANADA DAY!!!  HAPPY 4th of JULY!!!

So I'm a little late on the post....sorry

But, Friday evening of the Canadian long weekend, we lost all modern day communication due to the fires burning in Western Labrador and parts of Quebec.  There was no point of sale purchases, no internet, and no cell phones! These services slowly came back over the long weekend, and were fully restored late yesterday evening.

 

 

 THEN.........

 

We lost everything again the Friday of the American long weekend, until last night. I must say, its hard being on call with no cellular.  I was carrying around a brick of a pager that no one seemed to know how to use.  They kept calling my house leaving messages!

 

That aside, all things are well on the D-front. 

 

We are slowly learning to manage Amy's new desire to sleep in....All I ask, is for her to do it on the weekend to, not just during the week when I have to get up for work!

 

The sensor is working out well.  We've had some minor issues, but we are making it work.  I think I'm ready to try some basal testing using the CGM.

 

Saturday night, I thought we were in for a weeks battle, but it only last the night.  Amy threw up at my sisters house and then again at 1am.  I don't know if it was the birthday party, something she ate or a gastro bug.  Didn't last long....thankfully.  It was the first vomiting since on the pump, and it was nice not to have to force feed her when she was so obviously not hungry.

 

The past weekend was also my baby's birthday....she turned 5!

 

 

 

This is the cake that I made for her party.  Its my first attempt at using fondant.  I was quite please with it!

The summer here has been amazing lately.  Most people think that Labrador would be cold, but we typically have beautiful weather in the summer months.  Here the girls are cooling off while running in the sprinkler.

 

 

Hope you are enjoying your summer.  Can't wait for vacation time.  It will be great to see how pumping fits into travel plans.

 

Anyone have any great advice? 



Tuesday Tidbit

9:30am

That's what time Amy crawled out of bed yesterday morning!

I never thought the day would come that either of my girls would get up any later than 6:30!

I'm happy for the CGM, I snuck in her room twice and checked that all was well on the blood sugar front.

and it was!

Here's to sleeping in over summer holidays!

Now if only I could too!